The New Normal

Todd W Franzen

August 17, 2023

Why the Old Mindset No Longer Applies

A painting named "New Normal" in the style of Van Gogh with the text The New Normal: Why the Old Mindset No Longer Applies

As a cancer survivor, I know firsthand the challenges of navigating life after treatment. The physical and emotional changes can be overwhelming, and adjusting to the “new normal” of survivorship can be difficult.

However, with the right resources and support, finding a way forward and living a fulfilling life is possible.

Understanding cancer survivorship is crucial in adapting to the new normal. Survivorship begins at the time of diagnosis and continues throughout the rest of a person’s life. It encompasses life’s physical, emotional, and psychosocial aspects after cancer treatment.

It is important to remember that survivorship is not just about “beating” cancer but about learning to live with the changes after treatment.

Key Takeaways

  • Cancer survivorship encompasses life’s physical, emotional, and psychosocial aspects after treatment.
  • Adapting to the new normal after cancer can be challenging, but living a fulfilling life with the proper support and resources is possible.
  • Survivorship is not just about “beating” cancer but about learning to live with the changes after treatment.

Understanding Cancer Survivorship

Defining Survivorship

As a cancer survivor, I understand that survivorship is a term used to describe the experience of living with and beyond cancer. It encompasses a cancer diagnosis’s physical, emotional, and practical challenges. Survivorship begins at the time of diagnosis and continues throughout one’s life, regardless of whether they are in remission or have completed treatment.

Survivorship is a unique experience for each individual. It can be a time of joy, and celebration but also a time of fear and uncertainty. Some survivors may experience physical side effects of treatment, such as fatigue, neuropathy, or lymphedema. Others may struggle with emotional challenges like anxiety, depression, or post-traumatic stress disorder (PTSD). Survivorship can also bring practical challenges, such as financial difficulties or difficulty returning to work.

The Journey of Survivorship

The journey of survivorship can be challenging, but it is essential to remember that you are not alone. There are resources available to help you navigate this new normal. Your healthcare team can guide managing side effects and monitoring for recurrence. Support groups and counseling can help you cope with the emotional challenges of survivorship. Financial assistance programs and vocational rehabilitation can help you overcome practical challenges.

It is essential to take an active role in your survivorship journey. This means advocating for your health and well-being, asking questions, and seeking resources. It also means taking care of yourself physically, emotionally, and spiritually. Eating a healthy diet, exercising regularly, and practicing stress-reducing activities like meditation or yoga can all help you feel your best.

In conclusion, survivorship is a unique and challenging journey, but it is one that you can navigate with the right tools and support. Remember that you are not alone and that resources are available to help you. By taking an active role in your survivorship journey and caring for yourself holistically, you can live a fulfilling life beyond cancer.

The New Normal After Cancer

Embracing the New Normal

As a cancer survivor, I know firsthand that life after treatment can be challenging. However, I have realized that this new normal is an opportunity to embrace change and positively adjust my life. Instead of dwelling on the past, I have focused on what I can do now to improve my physical and emotional health. I have learned to appreciate life’s small things and prioritize self-care.

Fear of Recurrence

The fear of recurrence is a common concern among cancer survivors and can be overwhelming. However, I have found that staying informed and proactive about my health has helped to ease my anxiety. I make sure to attend all of my follow-up appointments and to communicate openly with my healthcare team. I also try to maintain a healthy lifestyle by cycling regularly and avoiding unhealthy habits.

Hope and the Future

Despite the challenges of survivorship, it is essential to maintain hope and focus on the future. I have found that setting goals and working towards them has helped me to stay positive and motivated. Whether learning a new skill, traveling to a new place, or simply spending time with loved ones, there are many ways to find joy and purpose after cancer.

In conclusion, survivorship is a journey that requires patience, resilience, and a willingness to embrace change. While it can be challenging sometimes, it is also an opportunity to grow and discover new possibilities. As a cancer survivor, I have learned that the new normal doesn’t have to be dull and that with the right mindset, anything is possible.

Physical Changes and Challenges

Late Effects of Treatment

As a survivor, I have experienced some physical changes and challenges due to the late effects of treatment. These effects may include heart and lung problems, eye and hearing changes, and sleeping challenges. It is important to give yourself time to adapt to these changes and take it one day at a time.

Common Side Effects

I experienced many common side effects during treatment, such as hair loss, nausea, diarrhea, fatigue, pain, and neuropathy. These side effects can be challenging, but there are ways to manage them. For example, physical activity helped me manage my fatigue and maintain a more proper weight.

Managing Physical Changes

Managing physical changes is difficult, but it is important to take care of yourself. Maintaining a healthy diet and staying active helped me manage my weight and stress. I also learned how to manage my scars and breathing through physical therapy and self-care techniques.

Discipline is crucial for both physical and mental rebuilding after cancer treatment. By staying disciplined with exercise, diet, and self-care, I have been able to manage my physical changes and challenges. It is important to remember that everyone’s experience is different, but with the right tools and mindset, we can all adapt to our new normal.

Emotional and Psychosocial Aspects

As a cancer survivor, I know firsthand that survivorship’s emotional and psychosocial aspects can be just as challenging as physical ones. Coping with stress and anxiety is a common experience for many survivors. Finding healthy ways to manage these feelings is essential, such as exercise, meditation, or talking to a therapist.

Support groups and resources can also be incredibly helpful. Connecting with other survivors who understand what you’re going through can be a powerful way to feel less alone. Many support groups are available, from in-person meetings to online forums. Finding a group that feels like a good fit for you is crucial.

In addition to support groups, many other resources are available to help with survivorship’s emotional changes and psychosocial aspects. These resources can include counseling services, financial assistance programs, and educational materials. It’s essential to take advantage of these resources and to advocate for yourself when necessary.

Coping with Stress and Anxiety

Stress and anxiety are everyday experiences for many cancer survivors. It’s essential to find healthy ways to manage these feelings. Some strategies that have worked for me include:

  • Exercise: Regular exercise can help reduce stress and anxiety, improve mood, and boost energy levels.
  • Meditation: Practicing mindfulness meditation can help reduce stress and anxiety and improve overall well-being.
  • Talking to a therapist: Talking to a mental health professional can provide valuable support and guidance.

Support Groups and Resources

Support groups and resources can be incredibly helpful for cancer survivors. Connecting with others who understand what you’re going through can be a powerful way to feel less alone. Some types of support groups that may be available include:

  • In-person support groups: These groups meet in person and provide a space for survivors to connect and share their experiences.
  • Online support groups: These groups meet virtually and can be a good option for those who may not have access to in-person groups or prefer to connect online.
  • Peer support programs: These programs match survivors with trained volunteers who have been through similar experiences.

In addition to support groups, many other resources are available to help with survivorship’s emotional changes and psychosocial aspects. These resources can include:

  • Counseling services: Many cancer centers offer counseling services to help survivors and their families cope with cancer’s emotional and psychological impact.
  • Financial assistance programs: Cancer treatment can be expensive, and many survivors may struggle with economic challenges. Many programs are available to help with medical bills and transportation costs.
  • Educational materials: There are many books, websites, and other resources available to help survivors learn more about their diagnosis, treatment options, and survivorship.

Family, Friends, and Social Support

Role of Friends and Family

During my cancer survivorship journey, the support of my friends and family was invaluable. They provided me with emotional support, helped me with daily tasks, and were there to listen when I needed to talk. It’s important to remember that cancer doesn’t just affect the person with the illness and their loved ones.

My friends and family played a crucial role in my recovery process. They helped me stay positive and motivated, and their presence made me feel less alone. They also helped me navigate the healthcare system and provided practical support, such as driving me to appointments and helping with household chores.

Building a Support Network

Building a support network is essential for cancer survivors. In addition to friends and family, many other resources are available, such as support groups and counseling services.

Support groups provide a safe and supportive environment for cancer survivors to share their experiences and connect with others who are going through similar challenges. They can also offer practical advice and information about managing side effects and coping with the emotional impact of cancer.

Counseling services can also be helpful for cancer survivors and their loved ones. They can provide a space to process emotions, learn coping skills, and develop strategies for managing stress and anxiety.

Overall, the support of friends, family, and other resources is essential for cancer survivors. Building a solid support network can help us navigate the challenges of survivorship and improve our overall quality of life.

Follow-Up Care and Monitoring

Importance of Follow-Up Care

As a cancer survivor, I know firsthand the importance of follow-up care. Regular follow-up visits with my healthcare team have allowed me to receive ongoing monitoring and support. It has also helped me to manage any late effects of cancer treatment that may arise.

One of the most critical components of follow-up care is having a follow-up care plan. This plan outlines the specific medical guidelines for my type and stage of cancer. It also considers my needs and wishes, ensuring I receive the best care possible.

Working with Your Health Care Team

Working with my healthcare team has ensured I receive the best possible follow-up care. I have found it helpful to establish a good relationship with my primary care physician and any specialists I may need to see.

During follow-up visits, my healthcare team monitors my overall health and looks for any signs of cancer recurrence. They also guide me in maintaining a healthy lifestyle and managing any late effects of cancer treatment.

In addition to regular follow-up visits, I have found it helpful to stay informed about the services available to me. This includes support groups, counseling services, and educational materials.

Overall, follow-up care and monitoring have been critical in helping me to maintain my health and manage any ongoing challenges related to cancer survivorship. I feel confident I can continue living a fulfilling life by working closely with my healthcare team and staying informed about my options.

Healthy Lifestyle and Self-Care

As a cancer survivor, I know how important it is to care for my body and mind. Maintaining a healthy lifestyle helps me feel better physically and emotionally. Here are some self-care tips that have worked for me.

Diet and Nutrition

Eating a healthy diet is crucial for cancer survivors. I eat plenty of fruits, vegetables, and whole grains. Limit my intake of processed foods and sugary drinks. I also try to drink plenty of water throughout the day.

Talking to your doctor or a registered dietitian about your nutritional needs is essential. They can help you develop a personalized plan that works for you.

Exercise and Physical Activity

Regular exercise can help cancer survivors feel better physically and emotionally. I try to stay active by going for walks, doing yoga, and strength training. It’s important to start slowly and gradually increasing your workouts’ intensity and duration.

Talk to your doctor or a physical therapist if you’re unsure where to start. They can help you develop an exercise plan that’s safe and effective for you.

Sleep and Rest

Getting enough sleep is crucial for cancer survivors. I try to stick to a regular sleep schedule and create a relaxing bedtime routine. I also make sure to avoid caffeine before bed.

If you’re having trouble sleeping, talk to your doctor. They may be able to suggest medications or other treatments to help you get a good night’s sleep.

Taking care of your body and mind is crucial for cancer survivors. You can improve your physical and emotional well-being by eating a healthy diet, staying active, and getting enough rest.

Resources and Assistance

As a cancer survivor, I understand how challenging it can be to navigate the many resources and assistance programs available. Here are some organizations and programs that have been helpful to me:

National Cancer Institute

The National Cancer Institute (NCI) provides information and resources for cancer survivors. Their website offers information on the “new normal” of survivorship, including managing physical and emotional changes, coping with the fear of recurrence, and more. Additionally, the NCI offers a Cancer Information Service, which provides free, confidential information and support to people with cancer and their families.

American Cancer Society

The American Cancer Society (ACS) is a national organization that provides various resources and programs for cancer survivors. They offer support groups, a 24/7 helpline, and a Cancer Survivors Network. The ACS also offers practical assistance, such as transportation to appointments and lodging for patients and caregivers who must travel for treatment.

Financial Assistance

Cancer treatment can be expensive, and many survivors struggle financially. Several organizations offer financial assistance to cancer patients and survivors. The Nebraska Cancer Network financially supports cancer patients in the Nebraska Sandhills area. The Heartland Cancer Foundation offers assistance programs that focus on improving the quality of life for breast cancer survivors.

Practical Help

Practical assistance can be just as necessary as financial help. Project Pink is an organization that seeks to provide support for a variety of services, both large and small, that focus on improving the quality of life for breast cancer survivors. They offer house cleaning, meal delivery, and appointment transportation services.

Remember, as a cancer survivor, you are not alone. Many resources and assistance programs are available to help you navigate this difficult time. Don’t be afraid to reach out and ask for help when you need it.

Special Considerations

Childhood Cancer Survivors

As a childhood cancer survivor, I understand that the long-term effects of treatment can be overwhelming. Regular check-ups with a healthcare provider are crucial for monitoring potential late effects, such as heart problems, infertility, and secondary cancers. Maintaining a healthy lifestyle, including a balanced diet and regular exercise, is also vital to reduce the risk of these late effects.

Breast Cancer Survivors

As a breast cancer survivor, I know that the fear of recurrence can be a constant worry. Working with a healthcare provider to develop a follow-up care plan that includes regular mammograms and other tests as recommended is essential. Maintaining a healthy lifestyle, including a balanced diet and regular exercise, can also help reduce the risk of recurrence.

Improved Treatments

As a cancer survivor, I am grateful for the advancements in cancer treatments. New treatments, such as immunotherapy and targeted therapy, offer hope for those with advanced or hard-to-treat cancers. Working with a healthcare provider to determine the best treatment options based on individual circumstances is essential.

Early Detection

As a cancer survivor, I know the importance of early detection. Regular cancer screenings, such as mammograms and colonoscopies, can help detect cancer early when it is most treatable. Talking to a healthcare provider about individual risk factors and screening recommendations is important.

As a cancer survivor, I understand the importance of regular check-ups, maintaining a healthy lifestyle, and staying informed about advancements in cancer treatments and early detection. By working with a healthcare provider and taking an active role in my care, I can continue to live a fulfilling life after cancer.

Final Thoughts…

As a survivor, I know firsthand the challenges of adjusting to a new normal after treatment. It can be overwhelming and scary, but it’s important to remember that you are not alone. Resources are available to help you navigate this new phase of your life.

One thing that helped me was setting realistic goals for myself. It’s easy to feel like you must make up for lost time, but taking small steps toward your goals can be more manageable and less stressful. Don’t be afraid to ask for help from friends, family, or a support group.

It’s also essential to take care of yourself both physically and emotionally. Eating a healthy diet, exercising regularly, and practicing self-care can all help improve your overall well-being. Don’t forget to prioritize your mental health, whether through therapy, meditation, or other forms of self-reflection.

Remember, there is no one right way to navigate life after cancer. Everyone’s experience is unique, and it’s okay to figure out what works best for you. Be patient with yourself, and don’t hesitate to reach out for help when you need it.

The journey after a cancer diagnosis can be challenging, but staying positive and focused on your goals is essential. With the proper support and resources, you can find a new normal that works for you and live a fulfilling life after cancer. -T

Frequently Asked Questions

What are some common challenges cancer survivors face in adapting to life after treatment?

Adapting to life after cancer treatment can be a complex process. Some common challenges include adjusting to physical changes, managing emotional stress, and coping with the fear of recurrence. It’s important to remember that everyone’s experience is different, and there is no right or wrong way to feel.

How can cancer survivors cope with PTSD and other emotional challenges?

PTSD and other emotional challenges are common among cancer survivors. It’s essential to seek professional help if you’re struggling with these issues. Support groups and other resources are available to help you cope with the emotional impact of cancer.

What are some positive ways to describe a cancer survivor?

A cancer survivor has faced a difficult challenge and has come out on the other side. Some positive ways to describe a cancer survivor include resilient, brave, and strong. It is essential to focus on the person’s strength and courage rather than their illness.

What research is being done on cancer survivorship, and what are the latest findings?

Much research is being done on cancer survivorship, including studies on the long-term effects of treatment and ways to improve survivorship care. Some of the latest findings include the importance of exercise and healthy lifestyle choices in improving survivorship outcomes.

What are some strategies for adjusting to the ‘new normal’ after cancer treatment?

Adjusting to the ‘new normal’ after cancer treatment can be challenging. Some strategies include setting realistic goals, focusing on self-care, and seeking support from friends and family. It’s essential to take things one day at a time and be patient with yourself.

What are the different phases of cancer survivorship, and what do they entail?

Cancer survivorship has three phases: acute, extended, and permanent. The acute phase begins at diagnosis and ends with the completion of treatment. The extended phase is a period of ongoing monitoring and management, while the permanent phase is a time of long-term survivorship. Each phase comes with its unique challenges and opportunities for growth.

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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