My Journey 10/18/10

Todd W Franzen

October 18, 2010

Sorry for the delay on the haps since the last entry. It has been an emotional roller coaster. From watching my counts fluctuate up and down, to getting a little bug while my counts were at zero, to going out side for the first time in two and a half weeks. The month in the hospital was heavy! My appreciation for just about everything has been overwhelming. With that said, I want to say thank you to everyone that stopped by. That helped make the time seem to go by much faster.

Walking out of the hospital after being in there for a month made me realize just how much we take the little things for granted. Fresh air, breeze, sun, the sound of the trees, birds exc… But along with the good, theres the bad, the noise of traffic, cigarette smoke, sirens. I could go on and on about both sides. For the most part, we don’t think of these things since our senses have adapted to these every day occurrences. I’m sure it’s all well documented sociological behavior, but unless you go through a period of time away from the natural and unnatural surroundings, describing initial feelings is almost impossible.

I thought you’d get a kick out of this… My mom and I went to the store Friday night to get some provisions for my recovery stay at Brents Place. Part of going out is having to wear a face mask and gloves. Went to Safeway at Cherry Creek since it’s pretty close to the apartment and I wanted to go for a little drive. Walking around the store, I would catch the other patrons turn around when they would see me and move to the next isle. I’m bald for the first time in my life, wearing a mask and gloves. They probably think I’m sick (which I am, just not what they think) and don’t want what I got. The reality of it is that I don’t want to catch their bugs. Precautions for me. The cool thing about is I pretty much got the hole store to myself. Hahahahaha. Cracks me up…

So I’m stoked that I’m out of the hospital! Im stoked that Erika is with me for the next couple days! And I’m thrilled to feel alive! Each day is getting better and better…..

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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  1. Todd, I know I am so late to the game to find out about your illness Dave some how found out today. I am so sadden to hear about this and from reading some of your back log it sounds like you've had quite a journey with this nasty disease, but I happy to hear that your counts are on there way up today – I will send good and happy thoughts in your direction! Dave and I have very found memories of you and all though we should stay in better touch we do think of you often … Your ears probably burn when we do!! 😉 I have a good feeling about this and high hopes … Plus you have so many epic shred days ahead of you! Sending all our love – April & Dave Benton

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