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Cancer Isn’t Over When Treatment Ends

Todd Franzen

September 19, 2023

The Importance of Post-Treatment Care

A painting named "Isn't Over" in the style of conceptual art with the text Cancer Isn't Over When Treatment Ends: The Importance of Post-Treatment Care

As two-time lymphoma cancer survivors, we know firsthand that the end of cancer treatment is not the end of the cancer journey. While the completion of treatment is a significant milestone, it does not mean that cancer’s physical, emotional, and mental impact disappears.

In fact, for many survivors, the end of treatment can be an incredibly challenging time.

Understanding Cancer and Cancer Treatment is crucial to navigating the cancer journey. However, it is equally essential to be aware of the emotional impact of cancer and the physical changes and symptoms that may continue after treatment.

Managing Side Effects and making Health and Lifestyle Changes can help improve quality of life and reduce the risk of recurrence. Support for Cancer Survivors is also essential, as the journey can sometimes be isolating and overwhelming.

This article will explore Life After Treatment and provide strategies for managing the emotional and physical challenges that may arise.

Key Takeaways

  • The end of cancer treatment is not the end of the cancer journey.
  • Managing side effects and making health and lifestyle changes can improve quality of life and reduce the risk of recurrence.
  • Support for cancer survivors is essential in managing cancer’s physical, emotional, and mental impact.

Understanding Cancer

Cancer is a complex disease that affects millions of people worldwide. It is a condition that arises when cells in the body begin to grow out of control and form abnormal growths known as tumors. These tumors can be benign (non-cancerous) or malignant (cancerous) and occur in any body part.

There are many types of cancer, each with its symptoms, risk factors, and treatment options. The most common cancer types include breast, lung, prostate, and colorectal cancer. However, many other types of cancer can affect different body parts.

One of the most important things to understand about cancer is that it is not a single disease. Instead, it is a collection of conditions that share some common characteristics. Cancer can affect anyone, regardless of age, gender, or ethnicity. While some risk factors can increase a person’s likelihood of developing cancer, the exact causes of the disease are still not fully understood.

If you or someone you know has been diagnosed with cancer, seeking the proper treatment and support is essential. Different treatment options include surgery, chemotherapy, radiation therapy, and immunotherapy. Each of these treatments has its benefits and risks, and the best approach will depend on the type and stage of cancer.

Overall, it is essential to remember that cancer is not over when treatment ends. Many cancer survivors may experience ongoing physical, emotional, and psychological effects even after successful treatment. It is essential to seek support from friends, family, and healthcare professionals to help manage these effects and improve your quality of life.

Cancer Treatment

Cancer treatment is a challenging process that can significantly affect a person’s physical, emotional, and mental health. As a two-time lymphoma cancer survivor, I know firsthand how overwhelming it can be to navigate the various cancer treatments available. Many options exist, from chemotherapy and radiation to surgery, immunotherapy, targeted therapy, hormone therapy, and clinical trials.

Chemotherapy is a standard cancer treatment that uses drugs to kill cancer cells. It can be administered orally, IV, or through a catheter. Radiation therapy uses high-energy radiation to kill cancer cells and shrink tumors.

Surgery involves removing cancerous cells or tumors from the body. Immunotherapy and targeted therapy are newer treatments that use the body’s immune system to fight cancer cells. Hormone therapy blocks the hormones that cancer cells need to grow. Clinical trials are studies that test new cancer treatments.

Each type of cancer treatment has its own benefits and risks; the best course of action will depend on the individual’s situation. Working closely with a team of healthcare professionals who can help guide you through decision-making and provide support throughout treatment is essential.

While cancer treatment can effectively eradicate cancer cells and prevent the disease from spreading, it’s important to remember that it’s not guaranteed. Cancer can return even after successful treatment; sometimes, treatment may not work. It’s important to stay vigilant and continue monitoring your health even after complete treatment.

Emotional Impact of Cancer

As cancer survivors, we know that the emotional impact of cancer can be just as challenging as the physical impact. Cancer can bring up a range of emotions, such as fear, anger, sadness, and uncertainty. These emotions can be overwhelming and may change daily, hourly, or minute-to-minute.

Anxiety is a common emotion that many cancer survivors experience. It’s normal to feel anxious about the future and what it holds. However, if anxiety becomes overwhelming and interferes with daily life, seeking support from a mental health professional or support group may be helpful.

Depression is another common emotion that can affect cancer survivors. It’s estimated that 70% of cancer survivors experience depression at some point. Symptoms of depression can include feelings of sadness, hopelessness, and loss of interest in once-enjoyable activities. It’s essential to seek treatment as soon as possible if you experience symptoms of depression.

Emotional support is crucial for cancer survivors. Support can come from family, friends, support groups, or mental health professionals. Find a support system that works for you and seek help when needed.

In conclusion, the emotional impact of cancer can be just as challenging as the physical impact. Anxiety and depression are common emotions that many cancer survivors experience and emotional support is crucial for coping. As cancer survivors, we know seeking help and finding a support system that works for us is essential.

Physical Changes and Symptoms

When cancer treatment ends, we may expect to feel like we’re finally done with the battle. However, the reality is that cancer isn’t over when treatment ends. We may experience physical changes and symptoms lasting for months or even years after treatment. As a 2-time lymphoma cancer survivor, I know firsthand the physical toll cancer can take on our bodies.

One of the most common physical changes we may experience is fatigue. Fatigue can be persistent and may not improve even with rest. It can occur occasionally and last just a short time or could last several months after treatment. We may also experience pain, nausea, vomiting, loss of appetite, and constipation. These symptoms can be caused by the cancer or the treatment we receive.

Shortness of breath is another physical change that we may experience. Various factors, including cancer, treatment side effects, or other health conditions, can cause this. It’s important to talk to our healthcare team if we experience any changes in our breathing.

In addition to these physical changes, we may experience changes in our appearance. For example, we may lose our hair during treatment, and it may take some time to grow back. We may also experience changes in our skin, such as dryness or discoloration.

It’s important to remember that these physical changes and symptoms are normal and that we’re not alone in experiencing them. It’s also important to talk to our healthcare team about any physical changes or symptoms we’re experiencing. They can help us manage these symptoms and improve our quality of life.

Life After Treatment

As cancer survivors, we know that life after treatment can be both hopeful and challenging. While we may feel relieved that the treatment is over, we may also experience various emotions, such as fear, anxiety, and uncertainty. It is important to remember that these feelings are normal and that we are not alone in this journey.

After treatment, it is crucial to focus on staying active and healthy. Regular exercise and a balanced diet can help us regain strength and energy. We should also continue attending follow-up appointments with our healthcare provider to monitor our progress and detect any potential cancer recurrence.

While we may have completed our treatment, the journey of survivorship is ongoing. It is crucial to find ways to cope with any physical or emotional changes that may have occurred due to treatment. This can include seeking support from loved ones, joining a support group, or seeking professional help.

Cancer survivors have a unique opportunity to leave a legacy of hope and inspiration for others. By sharing our experiences and advocating for cancer research and awareness, we can help others facing a cancer diagnosis feel less alone and more empowered.

Life after cancer treatment can be challenging but rewarding. By staying active, seeking support, and leaving a legacy, we can continue to thrive and inspire others in our community.

Managing Side Effects

Managing side effects after cancer treatment can be challenging. As a two-time lymphoma survivor, we understand the humbling experience of dealing with the aftermath of treatment. It is essential to know that even after treatment ends, side effects can persist for months or even years.

Treatment side effects can vary depending on the type of treatment received. For example, chemotherapy can cause hair loss, fatigue, and nausea, while radiation therapy can cause skin irritation and fatigue. It is essential to consult with your doctor about potential side effects before starting treatment.

Late effects of cancer treatment can also occur, such as hearing loss, heart problems, and nerve damage. These late effects can show up years after treatment has ended. It is crucial to keep up with follow-up appointments with your doctor to monitor any potential late effects.

To manage side effects, several strategies can be helpful. Here are some tips:

  • Communicate with your doctor and healthcare team about any side effects you are experiencing. They may be able to provide medication or other treatments to help manage them.
  • Maintain a healthy lifestyle by eating a balanced diet, exercising regularly, and getting enough sleep.
  • Try complementary therapies such as acupuncture or massage therapy to help manage side effects.
  • Join a support group to connect with other cancer survivors who may be experiencing similar side effects.

Managing side effects can be challenging, but with the right strategies and support, we can learn to live with them and move forward.

Understanding Recurrence

When we complete cancer treatment, we often feel relieved and grateful to have overcome the disease. However, it is essential to understand that cancer isn’t always over when treatment ends. Recurrence, or the return of cancer, is a possibility that we must be aware of and prepared for.

Cancer recurrence can happen for various reasons, including the presence of undetected cancer cells that were not eliminated during treatment, cancer cells that were resistant to treatment, or new cancer cells that develop in a different part of the body. The risk of recurrence varies depending on the type of cancer, the stage at which it was diagnosed, and the treatment received.

It is important to note that recurrence does not mean that the initial treatment was unsuccessful or that the cancer is untreatable. However, it does mean we must be vigilant and continue monitoring our health closely. This includes regular follow-up appointments with our healthcare provider and self-examination for new or unusual symptoms.

In addition to recurrence, some cancer survivors may be at risk for developing a second cancer. This risk is often higher for those with certain types of cancer or who have undergone treatment, such as radiation therapy. Discussing this risk with our healthcare provider and taking any necessary steps to reduce our risk, such as adopting a healthy lifestyle and avoiding exposure to known carcinogens, is essential.

Overall, understanding recurrence and the risk of a second cancer is integral to our journey as cancer survivors. By staying informed and proactive, we can continue to take control of our health and live our lives to the fullest.

Support for Cancer Survivors

As cancer survivors, we know that the journey doesn’t end when treatment does. It can be a challenging time with uncertainty, fear, and anxiety. However, having a solid support system can make all the difference. Here are some ways that loved ones and support groups can help cancer survivors during this difficult time:

  • Be there for us: Sometimes, we need someone to talk to. We may want to share our fears, frustrations, and hopes with someone who understands what we’re going through. Simply being there to listen can be a tremendous help.
  • Offer practical support: Cancer treatment can be physically and emotionally exhausting. Loved ones can help by offering practical support, such as cooking meals, running errands, or helping with household chores.
  • Join a support group: Support groups can provide a safe and supportive environment for cancer survivors to share their experiences, ask questions, and receive emotional support. The Cancer Survivors Network is an excellent resource for finding support groups in your area.
  • Encourage self-care: Self-care is essential for cancer survivors during and after treatment. Loved ones can encourage us to take care of ourselves by engaging in activities that promote physical, emotional, and spiritual well-being.

Remember, cancer survivors need support long after treatment ends. By being there for us, offering practical support, and encouraging self-care, loved ones and support groups can help us navigate this challenging time.

Health and Lifestyle Changes

After completing cancer treatment, it is essential to prioritize our health and make necessary lifestyle changes. Research shows that making healthy lifestyle changes during and after cancer treatment can help prevent the recurrence of a second cancer. It can also prevent or control other health problems, including excess weight and heart problems.

Adopting a healthy diet is one of the most significant changes we can make. Eating a balanced diet rich in fruits, vegetables, whole grains, and lean proteins can help us maintain a healthy weight, boost our immune system, and reduce our risk of developing other health problems. We should also limit our processed foods, sugary drinks, and red meat intake.

In addition to adopting a healthy diet, regular exercise is also crucial for our overall health. Exercise can help us maintain a healthy weight, reduce stress, and improve our mood. We should aim to get at least 30 minutes of moderate exercise most days of the week. This can include activities such as walking, cycling, or swimming.

Another meaningful change we can make is to quit smoking and avoid exposure to secondhand smoke. Smoking can increase our risk of developing cancer, heart disease, and other health problems. Quitting smoking can be challenging, but many resources are available to help us stop.

Overall, making healthy lifestyle changes can be challenging. Still, it is essential to prioritize our health and make necessary changes to reduce our risk of developing other health problems and prevent a recurrence or a second cancer.

Navigating the Health Care System

As a cancer survivor, we know firsthand that the end of treatment does not mean the end of our journey. Navigating the healthcare system can be overwhelming, especially when dealing with the long-term effects of cancer treatment. Here are some tips to help us navigate the system:

Find the Right Health Care Provider

Finding a healthcare provider who understands our unique needs as cancer survivors is essential. This may be an oncologist, a primary care physician, or a specialist in survivorship care. We should feel comfortable asking questions and discussing any concerns we may have.

Understand Your Health Insurance

Understanding our health insurance coverage is crucial when managing our health care costs. We should be aware of any deductibles, copays, and out-of-pocket expenses. If we have Medicare, we should familiarize ourselves with the coverage options.

Utilize Medical Equipment and Resources

Medical equipment and resources can help us manage the long-term effects of cancer treatment. This may include mobility aids, home health care, or palliative care services. We should work with our healthcare provider to determine the right resources.

Stay Up-to-Date on Follow-Up Care

Regular follow-up care is essential for monitoring our health and detecting potential issues early on. We should attend all scheduled appointments and screenings and communicate any changes in our health to our healthcare provider.

Navigating the healthcare system can be challenging, but we can manage our healthcare needs as cancer survivors with the right resources and support.

Advanced and Palliative Care

As cancer patients, we understand that treatment is only one part of our journey. We may transition to advanced or palliative care when treatment is no longer effective.

Advanced cancer has spread beyond its original site and can no longer be cured. Advanced cancer care aims to manage symptoms and improve quality of life. This may involve a combination of treatments such as chemotherapy, radiation therapy, and surgery, as well as pain management and emotional support.

Palliative care is a specialized medical care that focuses on relieving pain and other symptoms of serious illnesses, including cancer. Palliative care aims to improve the quality of life for patients and their families. Palliative care may include medications, counseling, and other support services.

Hospice care is a type of palliative care designed explicitly for patients nearing the end of their lives. Hospice care focuses on providing comfort and support to patients and their families during this difficult time. Hospice care may include pain management, emotional support, and spiritual care.

Advance directives are legal documents that allow patients to communicate their wishes regarding medical treatment if they cannot make decisions for themselves. Advance directives can include living wills, durable power of attorney for health care, and do-not-resuscitate (DNR) orders.

End-of-life care involves providing support and comfort to patients nearing the end of their lives. This may include hospice care, palliative care, or a combination of both. The goal of end-of-life care is to help patients and their families manage symptoms and prepare for the dying process.

As cancer survivors, we know that advanced and palliative care can be essential to our cancer journey. By working with our medical team and loved ones, we can make informed decisions about our care and focus on living the best life possible.

Role of Cancer Organizations

As cancer survivors, we know firsthand the importance of cancer organizations in supporting patients and their families during and after treatment. These organizations provide various services, including emotional support, financial assistance, access to clinical trials, and educational resources.

The American Cancer Society (ACS) is one such organization that has been instrumental in the fight against cancer. They offer a variety of programs and services, such as free rides to treatment, lodging assistance, and support groups. They also fund groundbreaking research and advocate for policies that improve cancer care.

Cancer Care is another organization that provides free professional support services to anyone affected by cancer. They offer counseling, support groups, educational workshops, and financial assistance. They also have a specialized program for men with cancer, addressing the unique challenges men face during and after treatment.

Cancer.net is a website run by the American Society of Clinical Oncology (ASCO) that provides information and resources for patients and their families. They offer articles on various topics, including treatment options, side effects, and survivorship. They also have a directory of oncologists and a clinical trials database.

Cancer organizations support patients and their families during and after treatment. They offer a wide range of services and resources that can help improve quality of life and provide hope for the future. We encourage all cancer patients and their families to use these valuable resources.

Frequently Asked Questions

What are the physical signs that chemo is working?

Chemotherapy can cause various side effects, but some signs that it works include shrinking tumors, reducing cancer symptoms, and improving blood test results. However, it’s important to note that not everyone will experience these physical signs, and they may not necessarily indicate that chemo is working for everyone.

What happens after cancer treatment ends?

After cancer treatment ends, many people experience a range of emotions, including fear, anxiety, and uncertainty. It’s essential to continue to follow up with doctors and receive regular check-ups to monitor for any signs of cancer recurrence. Additionally, some people may need to continue with ongoing treatment or therapy to manage cancer’s physical and emotional effects.

What are some things they don’t tell you about life after cancer?

Life after cancer can be challenging and unpredictable. Some things that people may not be aware of include ongoing fatigue, difficulty with memory and concentration, and changes in sexual function. It’s essential to be patient with yourself and seek support from loved ones and healthcare providers.

What is the next step when chemo stops working?

When chemotherapy stops, doctors may recommend other treatment options, such as targeted therapy, immunotherapy, or clinical trials. Working closely with your healthcare team to determine the best course of action for your situation is essential.

What is the life expectancy when chemo stops working for stomach, colon, ovarian, and pancreatic cancer?

Life expectancy can vary greatly depending on age, overall health, and the stage and type of cancer. When chemotherapy stops working, it’s important to discuss your options with your healthcare team to determine the best course of action for your specific situation.

What are the consequences of refusing cancer treatment?

Refusing cancer treatment can have serious consequences, including the potential for cancer to spread and worsen over time. It’s important to discuss any concerns or questions you may have about treatment options with your healthcare team to make an informed decision about your care.

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Todd Franzen


Todd Franzen is a 2X Hodgkins Lymphoma Survivor. Living in Breckenridge Colorado

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