My Journey 11/14/10

Todd W Franzen

November 14, 2010

This has been a good and sobering week. The tenth was one year since I was diagnosed. Since that point I figured I would put the tally together of the treatment and procedures that I’ve undergone.

12 rounds of ABVD chemotherapy (three hours each)
1 Bronchoscopy
1 Mediastinoscopy
2 rounds of ICE chemotherapy (three days each)
4 PET scans
Apheresis (stem-cell harvest)
1 round of BEAM chemotherapy (six days)
1 Autologous Stem-cell Transplant
Shit load of blood tests (CBC)

The last CBC on the 4th showed that my counts were all back with in normal range. The doctors are very happy with the results thus far, but I’ll feel better when the results come back from my next PET scan on December fourteenth. I went throughout a lot of treatments in the last year. I guess it’s only a little natural that I’m a bit nervous. Don’t get me wrong, confidence is high that I got this beat. But there is a little lingering in the back of my head what if… I’m coming to the conclusion that I am a survivor learning to live in remission. I’m fortunate that my body was strong going into this battle. November eleventh was day +45 since transplant. It also represents a lift of my diet restrictions. I think sushi is in order!

November ninth marked the third anniversary on my first date with Erika. We celebrated by going to Burke and Reliys. Cheesy hua, well it was where our first date was at.

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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