My Journey 9/22/10

Todd W Franzen

September 25, 2010

   Let me back track a more than a week… Got a call from the infusion center at P/SL about the counts and how many stem-cells we harvested.  The doctors told me that we need a minimum of 2 million to do the transplant.  5 million is recommended and we harvested 9.4 million.  It takes 2-4 days for most people to get the recommended number of cells and I was able to do in in one sitting.  I was hooked up to that machine for 5 hours.  So I think that was great news and i didn’t have to go back for another sitting.  Which was great.  I think that was the most surreal part of the process so far.  The noise was weird and watching my blood go through this machine and get processed is crazy.  Glad that I didn’t have to do that again!

   Today is day six of chemo to kill off any of the white blood cells that have the lymphoma.  I have one half hour more of this of this and will get a day off on sunday, day before transplant.  Today is day -2.  it counts down that way until transplant day which is day 0.  Days after that are in +1, +2, and so on.  Its kind of like a rebirth in a sense.  I get to add another birthday in a weird way.  We’ll call it my immune rebirth.  September 27th.  As the go on, I will be having a couple days of potential feeling the worst through this experience.  Due to my white cells dying and my stem-cells making new ones, I am going to guess that I am going to be feeling fatigue at its most.  Fortunately I got a spin bike to ride here in isolation and trying to get one or so hours on it a day.  The exercise is nice and motivating me to get my ass back in shape.  Which is good since being tied up to the pumps really limits my mobility.  That is going to be one of the keys on getting through this as fast as possible.  

   So day 0 approaches.  Im a bit scared.  Not about the procedure, but at this point I cant help but think of the what if’s!  Confidence is high but there is just a lot to think about.  Will the grafting work?  The thoughts go through your head especially since confidence was so high after the first twelve rounds of chemo to kill it off.  Hodgkin’s is a persistent bastard.  Is it cause for concern?  No!  I know im in good hands and everything that I have herd is the outcomes of this transplant are amazing.  Odds are very good!

  

  

        

Related Posts

Mentorship

Mentorship

How to Keep Your Mind Off Cancer

How to Keep Your Mind Off Cancer

How Cancer Can Kill

How Cancer Can Kill

Change Your Path

Change Your Path

Cancer Survivor Meaning

Cancer Survivor Meaning

Life After Cancer Reality

Life After Cancer Reality

Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

Your Signature

Leave a Reply


Your email address will not be published. Required fields are marked

  1. Aloha Franzen, This is Jeff aka dirt. I used to skate your ramps in blue river in 90-92. 5-0 grind to steep rocky drop off. I farm taro or kalo here in Oahu and the food is super good dense nurtrition. If you get me an address Id be happy to send you some and you can see if you like it. Its used to put weight on babys that have digestive problems and we have used it for friends here who have done chemo. So hit me up and ill lay it on you. Keep paddeling and throttleing and duckdiving. 8085611000 jeffreyrenner@gmail.com

{"email":"Email address invalid","url":"Website address invalid","required":"Required field missing"}