My Journey 9/14/10

Todd W Franzen

September 14, 2010

This is a trip!  I am hooked up to the machine that separates my stem-cells from my blood.  Its a centrifuge that is able to separate the different parts of my blood.  Frankly I dont really need to know any more about it than that.  
 Today is day -13 until transplant.  I have been having to check into Presbertian/St Lukes every morning since friday to get these shots called Nupegen.  It is similar to the Nulasta shots that I have been taking after each chemo round.  It also is a white blood cell booster, but this is short acting.  Where as the Nulasta works over a week or two period.  The shots ups all my blood cell levels to get ready for this beast.
   At the risk of sounding like a broken record, i’ve been trying to write down the things that I have felt like been milestones or significant mental challenges.  Today is one of them.  Watching my blood come out and cycled through this machine is doing two things.  One, realizing just how cool modern medicine is and two, just how fragile life can be.  Seeing my blood spin through this thing is surreal.  We are fortunate to be living in a time that we can treat these conditions.  This treatment wasn’t here a generation ago.  Thats a scary thought in its self.  But reassuring also!  
   Needless to say im feeling a little drained right now.  Ill up date soon. 

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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