My Journey 3/23/10

Todd W Franzen

March 23, 2010

   I spent a little time in bed last night thinking about this hole cancer deal.  What I guess seems so ironic about it is the stigma the word cancer has and what it means to people.  I’m incredibly fortunate that I was diagnosed with Hodgkin’s Lymphoma.  Not Colon, Kidney or Prostate cancer or another nasty type of cancer where the treatment is much harsher.  A friend of the family’s had a type of colon cancer where his chemotherapy treatments involved him going into the hospital for four to five days at a time every three weeks.  I go into my treatments for two and a half to three hours every two weeks.  Easy in comparison.  I completely understand why people want to give up!  Not only is it a very depressing experience, but it beats you down physically.  Being a retired professional athlete, just the thought of not being physically healthy takes a toll on the psyche.  Fortunately there have been glimmers of hope through this hole thing.  Family, friends, community (local and abroad), positive test results, and a fighting attitude make going through a serious illness tolerable.  I have three more treatments left, April 29th is my last day of treatments.  Believe me, I look forward to that day!  I dropped into the process head first with the full intention of beating my illness as fast as possible!         

   I guess there are times in life where you really realize just how fortunate you are.  This hole experience has made me realize just that!   

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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  1. Great attitude Todd. It's hard, I would think, for anyone to wrap their head around your experience while in the midst of it and have a sense of how fortunate they are given the circumstances. You definitely have our support in Vail, as you know, and I think you are a champion and kick ass!

    Look forward to seeing you very soon. xo Claire

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