My Journey 6/9/10

Todd W Franzen

June 9, 2010

   Yesterday was the culmination of anxiety and fear.  I went to St. Anthony’s Central for a procedure called a Bronchoscopy.  The doctor and nurse numbed my nose and sinuses and put a small tube through my nostrils, into my respiratory tract and into my lungs.  They took a biopsy of my lungs and also a biopsy of the spot in my PET Scan in my chest.  I didn’t feel a thing!  Granted they numbed my throat, and gave me a little Michael Jackson juice.  I even watched part of the procedure on their TV.  Little bit of a trip!  This is why I like modern medicine.  Some of the stuff they do is very fascinating.  I really felt this was non-invasive.  Dont get me wrong, I had a tube shoved into my nose and then into my lungs.  But with no pain, does it matter?  The Biopsy the doctors took in November was invasive.  A big ol’ needle shoved into my right side.  And I was awake for that only under local anesthesia.  That Sucked!  I guess what im trying to say is the fear and anxiety that we experience due to the unknown can some times be unbearable.  Only after you look at the experience in hindsight, you wonder why you were so afraid…

   Went to a friends going away party at the lodge and spa and was talking to a friend and acquaintances about my Hodgkin’s.  Went through the “how are you feeling”, “fill me in on what’s happing” questions which I dont mind.  Its actually a little therapeutic.  The conversation led to the heavy topic of Death.  One of the things that you go through is the uncanny fight with ones ego and everything that goes along with feeling ill.  For the record, I have never thought about giving up or suicide for that matter.  But I do understand why some one would want to do that.  I have too many things I want to do and places to go.  Golf to play, jet fuel to burn, but most important love to give to my family and friends.  To me, its obvious that my will to live is much greater than my will to die.  It has motivated me to get some of my life’s loose ends tied up.  Regular and living Wills.  Probably just do it through Legal Zoom.  I’ve had a lot of soul searching time and have lost a lot of friends over the years to snowboarding, driving and drugs accidents.  Not having a clear vision after you cant make decisions is very irresponsible.  Not so much to myself, but to my family!

 I haven’t gotten my results back from the lab yet as they should come at any time.  I have a pretty good idea on what is going to be the out come and im cool with it.  My fingers are crossed that it is just an abnormality or anomaly.  But I cant guarantee.  I can only go on my gut feeling.      

So I write this while waiting at a fork in the road.  Im not afraid, no mater what the result, I am prepared and ready to fight!                      

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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