My Journey 7/8/10

Todd W Franzen

July 9, 2010

   I received the results from the Mediastinoscopy on Tuesday (July 6th).  And the results that came back are conclusive!  My Hodgkin’s is reoccurring.  A definite blow!  So yesterday I had an appointment with a bone marrow and stem cell transplant specialist at Rocky Mountain Cancer Centers in Denver.  Dr. Brunvand studied in Seattle and coincidently we both graduated from Summit High School in Frisco.  A very smart man and knows his job very well.  Small world… and I feel really good about that!   

So now the fun begins…

   Tuesday I go to the hospital to start preparing my body for a Stem Cell Transplant.  I begin with two rounds of intense chemo therapy.  Each round, i’ll be at the hospital for about three days.  The goal of this is to get the lymphoma into remission.  That should take about three weeks starting Tuesday.  Once in remission, I’ll go through a battery of tests and re-evaluated.  Its called restaging.  I will also be going through a Pre-transplant Evaluation which is another battery of tests and biopsies.  Insane hua!  Im still wrapping my head around this…  I will have a CVC placed and the rest of the procedures will be done through that.  I will  have to wear it for 6 months.  The transplant should happen about two months from now. Got that!  Its honestly giving me a headache.

Click on Autologous Transplant if you want to enlighten yourself about my procedure.

   So its safe to say im scared!  And I’m a little shocked that its gotten this far…  Which is all the more reason to get going on this.  There is a part of me that finds this entire experience interesting as well.  Especially since im living it.  Medically speaking of course.  Even though finances are tight and economically its rough, everything feels sound and seems some what in control.  And im in touch with a woman that does financial assistance with the American Cancer Society.  Sweet!  Amongst this onslaught of information, even thinking of ones own mortality, there is so much love and hope that I know I will be 100% at the end of this.  I feel good and I feel strong!  Im ready to kick its ass!

Oh yea, I’ve been listening to a shit load of Clapton!    

        

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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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  1. Todd you are amazing and an inspiration to me. If anyone can "kick its ass" you are the man!!! I love you so much. Big hugs. Jan

  2. Hey Todd, long time no see! So glad that you have a blog, and I can read about what's going on and get updates on your status-I had no idea about this until today. Very serious indeed. But it sounds like you are in good hands, have loved ones close by, and have an exceptional attitude. You are a champion for sure. Lots of love from Portland and let me know if you need anything. xxoo Hudson

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