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People are Scared to ask Questions

Todd W Franzen

February 11, 2019

I was really fortunate to grow up in a good community. A small community where you knew everyone and everyone knew you. With that, also comes gossip and the quintessential nosy neighbor.


Now, I don’t consider this a bad thing.


When I was diagnosed, and as word spread, I would encounter people that were very curious. People that are scared to ask questions would tip toe around to see how I was feeling and if I needed anything.


At first, this was a very weird situation to experience.


Over time, I found that it worked really well to just talk about what I was going through. You can read some of my previous blog posts while I was going through treatment. Mostly I was writing to keep my family and close friends informed on what was going on with me.


If your on the go, download this episodes podcast!

My current approach


September 27, 2018 was eight years that I’ve been in remission. I am much more comfortable about having discussions and talking about my experience with cancer.


I have worked hard to let people know that it is OK. That I do want to talk about it. It became very therapeutic for me after diagnosis.

Actually, I prefer to talk to people about cancer and share my story with those that are hesitant to bring up questions.


That’s the thing about cancer, the stigma that it comes with is hard for people to grasp. It was hard at first for me to grasp. People have a tendency to overlook this reality, not because they don’t care, but because they cannot relate to the experience. I know because I was one of them.


For you survivors and even current patients going through treatment, talk about your experience. Write about your experience. As more people share their experience and their story, more attention will be brought to what cancer really is.


These Three Tips will help you ease people’s minds about being a Lymphoma Survivor.


1. The Awkward Silence


The best way to approach this issue is to come out with a big smile and reassure the individual that its ok. Let them know that it’s a crazy world and life can throw some wild curve balls. Your just in the middle of a good one right now.


Your mindset is critically important, how you approach each individual will help prepare you for the truly big issues that you are facing. And as long as you’re in a growth mindset and constantly learning from the experience, that’s your chances of surviving have gone up dramatically!


2. The Over Apologetic


Then there are those that don’t know what to say and nervously babble how sorry they are that you have to go through this experience.


I get it, they are concerned and don’t really know how to approach the situation. So they let their nerves do all the talking.


I’ve had to interrupt a number of people that just wouldn’t stop talking. Tell them with a very firm tone to STOP. Take a deep breath in front of them, calmly let them know that you understand there concern and more than happy to answer any questions they have.


You have to take control of the situation in order to have the mental bandwidth to deal with everything that is going on.


3. Avoidance


I sit on the fence with this one. These individuals are going to challenge you the most out of any one else. The people that you feel are avoiding you are perhaps some of you closest friends or family. Most likely don’t know what to say or do when they see you. They don’t reach out or haven’t offered to help. This is the Awkward Silence but to the extreme!


There’s two ways to approach this.

1. Is to call them out and ask what’s the the deal. Or 2. Give it some time. There is a chance that both of you are not ready to face the challenge of the conversation. Back to that Mental Bandwidth idea.


The main reason why I’m on the fence is there are those that you may wonder why you haven’t talked to them about your situation. Some may feel like they don’t have anything to say. That’s the thing about Cancer, you will undoubtedly lose some friends and acquaintances along the way.


This is where you have to dig deep and have the courage to know that there are some people that will never understand what’s going on.

And that you may Never get an answer…


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Todd W Franzen


I am a two-time Hodgkin's lymphoma survivor with 17 years of documented cancer survivorship experience that spans multiple treatment eras. My journey began in November 2009 with a Stage 4B diagnosis at age 33, and continued through recurrence and treatment in 2019-2021. This rare longitudinal perspective—living through two complete treatment cycles a decade apart—gives me comparative insight into cancer care evolution that no single medical professional can replicate.

MY TREATMENT EXPERIENCE

First Treatment Cycle (2009-2010)
• 12 infusions of ABVD Chemotherapy over 6 months
• 2 infusions of ICE Chemotherapy (4-day infusions)
• 1 infusion of BEAM Chemotherapy
• 1 Autologous Stem-Cell Transplant
• 8 PET Scans
• 6 CT Scans

Second Treatment Cycle (2019-2021)
• 2 infusions of Brentuximab and Bendamustine
(Severe allergic reaction to Brentuximab — hives)
• 25 rounds of Radiation to Mediastinum (46RAD combined)
• 4 infusions of Keytruda Immunotherapy
• 2 infusions of IGEV Chemotherapy (5-day infusions)
• 1 Total Body Radiation (2RAD)
• 1 Sibling Allogeneic Stem-Cell Transplant
• 6 PET Scans
• 6 CT Scans

COMPARATIVE EXPERTISE

Surviving two stem-cell transplants—one autologous, one sibling allogeneic—across different decades of cancer treatment has given me firsthand experience with nearly every major modality in lymphoma care: combination chemotherapy, salvage chemotherapy, immunotherapy, radiation protocols, and both types of stem-cell transplantation. I've experienced treatment side effects from the "standard" ABVD era through the modern immunotherapy period.

This comparative expertise matters for survivors. Treatment protocols in 2009 looked very different from 2019, and the long-term survivorship implications are still emerging. Doctors treat; survivors live with the aftermath. I've done both—twice.

CREDENTIALS & PROJECTS

• Founder: Strap In For Life 501(c)(3) nonprofit
• Author: Internal Architect: A Cancer Survivor's Memoir
• Licensed Insurance Agent (practical healthcare system navigation)
• 17-year cancer survivor documenting the journey since 2008

WHAT I WRITE ABOUT

Cancer survivorship doesn't end when treatment stops—it's when the real reconstruction begins. My blog covers:
• Practical survivorship (relationships, careers, identity)
• Treatment experience insights (what they don't tell you)
• Long-term effects and secondary health considerations
• Mental health and emotional reconstruction
• Healthcare system navigation

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